Professor’s ‘Road to Discovery’ goes through Granby
Sky-Hi News Intern
On Tuesday, June 16, the University of Notre Dame’s Dean of the College of Science and physics professor Greg Crawford arrived in Granby – a pit stop along the way on his cross-country bicycle ride.
Crawford rides to raise awareness for Niemann-Pick Type C Disease (NPC) research. This disease primarily affects children and inhibits the proper storage of cholesterol, ultimately leading to neurodegenerative issues and death.
Crawford was first inspired to start his ride when he met Mike and Cindy Parseghian; three of their four children died from NPC. The Parseghian family started the Ara Parseghian Medical Research Foundation, named after the children’s grandfather and Notre Dame’s famous football coach, Ara Parseghian.
“I was so taken by their story,” Crawford remembers. “They lost their children but kept fighting for others.”
The Parseghian family’s story also inspired a partnership between the Foundation and the University of Notre Dame, and now, Crawford’s annual bike ride raises funds for NPC and other neurodegenerative disorders and their research. This year, Crawford hopes to raise another $1 million.
“We wanted to benefit rare or ultra rare diseases,” Crawford explained. “Only a few hundred children have NPC in the U.S.”
Throughout his journey, aptly called the “Road to Discovery,” Crawford hopes to inspire other people to start funding the research for a cure.
To prepare for such a physically demanding task, Crawford participates in CrossFit during the winter months and then starts training on his bike once the snow melts. His route took him through Rocky Mountain National Park on Trail Ridge Road. Crawford says that his Granby to Craig leg of the trek was his favorite because of its scenic beauty alongside the Colorado River and all the wildlife.
For more information about Greg Crawford’s journey or to donate to NPC and other disorder research, go to firstname.lastname@example.org.
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